Host your next event to benefit the International Rett Syndrome Foundation. Whether it's a lemonade stand, bake sale or even a beef raffle, you can host your event in honor of your loved one with Rett. Contact Jackie Ventura at JVentura@rettsyndrome.org to get started or with questions.
Creating a World Without Rett Syndrome
Every two hours, a child is born that will be diagnosed with Rett syndrome. It affects 1 in 10,000 females and is even rarer in males. It severely impairs every aspect of an individual’s life. Rett syndrome robs them of the opportunity to speak, walk, and have purposeful use of their hands.
There is no current treatment available for Rett syndrome, but that won’t always be the case. The International Rett Syndrome Foundation has changed the current Rett syndrome landscape, accelerating research to clinical trials while empowering families with an affected child.
Rett syndrome doesn’t stop. Neither do we. Join the fight to help us OVERPOWER Rett and bring treatments and a cure to those living with Rett.